114 Comments
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David Lebovitz's avatar

Wow Adam, I don't know what to say. I feel (like a lot of your readers do) that we're on a journey with you, and now, there's this one. You've have a banner year and thankfully you have Craig and your family, as well as the rest of us, on your side. Thank you for sharing something so difficult and we're all here for you too. - xxxx

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Harrison's avatar

spot-on with this David

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Annalynn Castillo's avatar

I’ve been following your (Adam and David) journeys, along with Pim’s, for over two decades. Thank you for sharing and know that you’re not alone and you’ve got a lot of people supporting you. I’m fully supportive of the yoga; I DMd you about my teachers with PD as well. Take care. xxx

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Robyn's avatar

Oh, my. I almost never comment but I’ve been a reader of yours for a very long time (close to the beginning) and I just felt like I had to say something here - of course, now I am not sure exactly what to say but - I’m glad that you’re looking at this with a good perspective, that you’ve found out about it early on, and that you’ve got a plan and such a supportive and loving family and friends.

I had a stroke two years ago at 41, and while I was lucky in that it did not do huge damage, it absolutely was a big change & I lost parts of myself that defined the old me. It’s taught me a lot - most importantly to please be kind and gentle on yourself as you get used to new normals and frustrations. Don’t be afraid to be sad/mad/etc on occasion but don’t give in either. This is a long game - and you’ve absolutely got the right perspective. And the laughs are so important!!!

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Luisa Weiss's avatar

Oh, Adam. I have tears in my eyes but I'm also laughing out loud. Shake and Bake! You're hilarious, as always.

As for normalizing hard stuff - it's so important, not just for readers, but also for yourself. I am so glad (honored, touched, etc—no word is really 100% accurate) you're taking us with you on this new chapter...xoxoxox

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Carla's avatar

I am so moved by your bravery in sharing this news as you’re still processing it. Thank you for helping to normalize these things, which impact all of us and our families in different ways. Sending you lots of love and support, and looking forward to your next post.

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Tell Me Why I'm Wrong's avatar

My god I just love you. This is the reason I can never get myself to unsubscribe whenever I'm doing a Substack budget cutback. Your humanity is a blessing to us all. I'll be rooting for you and cheering you on as always.

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Jenny Rosenstrach's avatar

This is so beautiful, Adam. And now is the time for you to reap the rewards of creating this incredible community. We all love you. We are all with you. And will be every step of the way.

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Anna Smith's avatar

Hey Adam - I’ve been a follower and subscriber for many years. I have MS so know something of the journey you’re starting. Having craig will make a huge difference . My husband asked for a disability car park sticker at my diagnosis meeting despite me not being disabled physically at the time - he said he was looking for the positives. Thank you for sharing - I know you’re not alone but you have a lot of people rooting for you on this path. With much love xxx

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Susan Spungen's avatar

Adam- I am so sorry and shocked to hear this. Having just experienced my mom's PD over the last few years I know an awful lot about it. There are a lot more treatment options for a young healthy person like you. I'm sure you're discussing those with your doctor. You have lots of cooking and fun ahead and we'll be right there with you. xx Susan

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Elizabeth Minchilli's avatar

Oh Adam, how incredibly brave of you to open up your heart about all of this. And it's no surprise you are doing it with hope and humour. Thank you so much for sharing, since whatever you are going through it's so good to know you are not alone (you have this whole world you've created) but also that others know they are not alone. Sending virtual hugs.

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Maggie Hoffman's avatar

Oh, Adam, I'm so sorry about this news and just want to send you so much love. I don't know if it came up when we chatted but there's been a lot of PD in my family. Rock Steady Boxing became a really wonderful community for my mom, not sure if they have BK classes.

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Kathy Forbes's avatar

Hello Adam

I'm sort of speechless because I was diagnosed with Parkinson's in February and my mobility is significantly effected as I walk with a cane very slowly. I use a walker so I can raise my heartbeat when I go to the park and strangers admire my resilience but I'm feeling desperate. I hear you and agree that family is so important as we are trying to figure out what this all means. Sending you a hug.

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Brocka's avatar

My heart goes out to you. I can only imagine how scary this diagnosis is. I want you to know that being diagnosed so early is a blessing too. I had a very close family friend who was diagnosed in his 40s and lived a very normal golfing, travelling, and law practice life until the final three years when the Parkinson’s progressed significantly. He died at 84. You still have your whole life!! I hope this calms your nerves even a little bit ❤️🙏

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John Flood's avatar

My best wishes for you Adam. That was a shock of a diagnosis. Much of our feelings and anxieties about illness seem to belong to a time ago when things were much worse. So much has progressed in treatment and management that it's a different world. I hope you get into the swing of exercise for its positive outcomes for you. As one who is terminally lazy I have managed to persuade myself exercise is good. I hope you do also. John

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Charlotte Freeman's avatar

Oh Adam! Well, that *is* news -- as someone who's been out here reading you on the other side of the internets since the beginning, when we were all just bloggers, I'm so sorry to hear you've hit this significant speed bump, and thank you for normalizing that we're all going to run into something sooner or later. We're all sending all the vibes, to you, and to Craig, and to all of your family. Big love ....

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Judy Borron's avatar

My husband has Parkinson’s. He’s doing fairly well; first started minor symptoms years before his actual diagnosis. I’m glad you were able to get answers, as hard as it is to take in. We learned every patient is different, not to compare yourself to others. I wish you the very best - sounds like you have to right attitude to exercise and take care of yourself. I’ve enjoyed your posts for several years.

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Corinne A's avatar

Shake and Bake……I love it! Laughter really is the best medicine. Sending good vibes to you and Craig. Hang in there dudes. xoxo CA

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